Losing My Kidney and Finding My Voice: Confessions of a Living Donor explores the author’s experiences giving away an organ to a stranger through a kidney chain, an innovative form of altruism spearheaded by the National Kidney Registry. The questions Rachel grappled with led her on a path of self-discovery to unravel why she felt moved to give of herself in an unusual way. Her working-class values, coupled with decades of experience in her union, the United Steelworkers, informed her decision and expanded her family to include a community embracing her as one of their own, allowing this story to transcend the boundaries of solidarity and justice.
Rachel reveals insights from television celebrities Katie Couric, Oprah Winfrey and her own grandmother which prompted her to continue the family legacy of donation that began with her uncle, a beloved deceased donor. She explores her family’s history with grief and suicide and how it influenced her decision to put her kidney on a plane to Pennsylvania without her. From advocating within the halls of Congress to walking in the Rose Parade on behalf of living donors, Rachel discovered a new platform and a realm of possibilities for living a life with purpose.
Losing My Kidney and Finding My Voice is an insightful testament of the impact living with purpose can bring. With the Foreword by Ned Brooks, living donor and founder of the National Kidney Donation Organization, we are reminded of just how rare non-directed kidney donors are and why that is. The Afterword by J. Randy Johnson, author and retired Steelworker confirms that when we look out for each other in solidarity, life changing things can happen.
Discussion questions are available for support groups, book clubs & classroom settings. A portion of the proceeds from this memoir will be donated to support living donor education and advocacy.
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"Rachel Bennett Steury’s Losing My Kidney and Finding My Voice tells the story of how she chose to become a living kidney donor for a stranger. Her family already had a connection to organ donation through her Uncle Ed, who was a deceased donor. Because of that history, she grew up seeing giving as something that mattered on both a personal level and a broader social one. A televised news segment about kidney chains sparks a turning point, introducing her to the National Kidney Registry and the possibility that one donor can set off a series of life-saving transplants. From there, she walks through the long medical screening process, the psychological evaluations, the surgery itself, and the structured recovery. Along with her personal story, Steury explains dialysis statistics, transplant costs, and the economic strain of kidney failure. As she weighs the risk, responsibility, and solidarity of her decision, one question keeps repeating in my mind: What does it actually mean to give part of your body to someone you will never meet? Steury candidly shares what the experience taught her.
Losing My Kidney and Finding My Voice does not romanticize organ donation. Instead, Rachel Bennett Steury focuses on the real-life details, carefully showing the social, civic, financial, and personal layers behind her decision. She ties her working-class, union background to the idea of economic justice, arguing that a transplant restores not only health but the ability to work and live freely. The book seamlessly transitions between hospital rooms, policy debates, family memories, and national statistics, maintaining clarity throughout. I was struck by how calmly she discusses fear, risk, and doubt before surgery. I was honestly surprised by how rare non-directed donors actually are and how quickly most of us assume someone else will do it. Steury explores the myths about long-term health and questions the notion that giving like this is completely selfless. At the same time, she still makes space for community and gratitude. Overall, I found her memoir thoughtful, practical, and sincere. I highly recommend reading it.”
"Rachel has truly made her heart filled voice jump from the pages that contain her brilliantly written story."
J. RANDY JOHNSON, AUTHOR AND RETIRED TRADE UNIONIST WITH THE UNITED STEELWORKERS INTERNATIONAL UNION
"Well now, here’s a present-day antidote for – as Thomas Paine once put it -- “the times that try men’s souls”. Rachel writes about her quintessentially human journey toward a brighter tomorrow. Her memoir is well-written and memorable on its own as a story of self-discovery, but its depth is profoundly spiritual. An inspiration during our troubled times."
DENNING POWELL, CO-AUTHOR OF SCIENCE FICTION TRILOGY MONKEY TRAP, HIDING HAND AND SPLINTERED LIGHT
"Rachel is the real deal. A genuine generous heart, she does the research to meet her goals, one of which was to start a chain by donating her kidney. A later goal was to write a book about it. For such a private person, Rachel opens up about her family history, her current family, friends and colleagues, and her place in the world -- and the actions she's willing to take to change the world. I want to be like Rachel -- you will too!"
BETH BERRY, AUTHOR OF HAIKU FRENZY, ENDOMETRIAL AND KIDNEY CANCER SURVIVOR
"This book offers a fascinating and enjoyable look into a world that most people do not even know exists. It shows you this world from the point of view of an ordinary person discovering it for the first time."
DAN CRAGAN, PLAYWRIGHT, COMPOSER, KIDNEY AND PANCREAS TRANSPLANT RECIPIENT
"An insightful and inspiring must read!"
RITA JOHNSON, AVID READER, NON-FICTION ENTHUSIAST